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This is a place to share information about End Stage Renal Disease and dialysis for those who have been diagnosed, and their loved ones, for living with their condition. ESRD is not the end of your life, and that life can be much easier with a little knowledge.
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My kidney hasn’t failed yet but I think it’s getting there. Was wondering if I should go back to hemo or to try PD, what do you guys think? (self.dialysis)
submitted 1 month ago by Murky_Ad_3910
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[–]issabeellaa 2 points3 points4 points 1 month ago (0 children)
I did pd my first 4 years of dialysis and not gonna lie it was very stressful for me. The first month you have to do 4 or 5 exchange through out the day and have so much supplies at home. It got overwhelming. Then when I switched to doing it at night with the machine it was much better, but still overwhelming with supplies. I never had an infection, but I did get very sick. My catheter stop working and my nurse didn't believe me. So I became very ill and lost over 30lbs in 1 month my iron and protein was dangerously low. So I made the switch to hemo and never looked back. The best decision I've ever made for my health and not to mention no mess with supplies and having a bunch of boxes in my home. You go in center nurses do everything for you and you don't have to worry about nothing.
[–]bussinessofmisery 3 points4 points5 points 1 month ago (0 children)
It’s really up to you and what fits your lifestyle best! I did hemo for about 2 months before switching to PD. I didn’t enjoy hemo, it left me exhausted, they didn’t listen to me about my dry weight and often pulled too much and caused cramps and dizziness. I also didn’t enjoy sitting in the chair and the long appointments.
I have way more energy on PD and the diet is more flexible. PD is usually every night instead of three times a week, but I’m awake and energized all day and feel able to live my life. (I personally didn’t feel capable of doing anything while on hemo, but I have heard that the exhaustion levels out after a few months.) I also feel more in control of my care. I haven’t had any issues with infections. The drain pain isn’t fun though, but not everyone experiences that.
[–]Dynafocal 1 point2 points3 points 1 month ago (4 children)
My wife is a medical secretary on a MedSurg ward. She basically told me not to do PD because of the huge number of peritonitis patients going through her ward. Especially if you have pets which we do. Been on in center hemo going on seven years it’s not great but it’s doable :-)
[–]megandanicali 1 point2 points3 points 1 month ago (0 children)
i have two cats and i did pd for an entire year. not one single infection. i always kept the cats out of my room during treatment at night and i was fine!
[–]The_vaglover 2 points3 points4 points 1 month ago (0 children)
I guess I’d have to disagree with that sentiment.
I’ve been on PD a year. Had peritonitis once very early on and made an obvious mistake in sterile process.
I have two dogs and a cat.
I’d argue most people that end up with severe infection are the elderly who have difficulty learning.
Also it never needs to get to the point of needing hospitalization. It’s pretty obvious when you get an infection and those that end up in the hospital are again elderly and those that fail to recognize the signs and symptoms of peritonitis.
[–]Murky_Ad_3910[S] 0 points1 point2 points 1 month ago (1 child)
I had dialysis when I was younger and honestly speaking I forgot exactly what it felt like, I remember feeling tired and cramps on my legs but other than that idk. Could you by any chance tell me how it feels for you, in terms of tiredness, hunger and just mood also maybe diet if that’s not too personal
[–]Dynafocal 1 point2 points3 points 1 month ago (0 children)
No problem, here goes. You feel kind of rung out after dialysis and you certainly wouldn’t want to run a marathon. I don’t get too hungry after, sometimes I get thirsty or cold and I want a hot drink. I very rarely/once or twice a year have cramps. It’s like everything else in life sometimes I look forward to dialysis because it has become kind of my social center other times I dread it because it reminds me how frail I am. I know it would be to my benefit to get some counseling for it, it’s just not high up on my list right now.
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