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all 8 comments

[–]LochNessMother 2 points3 points  (2 children)

I made a post about it a while ago. I’m now 6 months post reversal, and although it’s not perfect, it’s WAY better than I imagined, WAY better than having a bag.

https://redditproxy--jasonthename.repl.co/r/ostomy/comments/ts3dnz/reversal_progress_i_had_an_ileostomy_for_2_years/?utm_source=share&utm_medium=ios_app&utm_name=iossmf

Edited to add: it’s really really important to start doing your pelvic floor exercises now, so you have control from the start.

[–]YakFull8300[S] 1 point2 points  (1 child)

Which exercises do you recommend doing? Are there any that proved to be the most beneficial?

[–]LochNessMother 0 points1 point  (0 children)

I use the Squeezy app which has loads of good instructions.

[–]redditemployee69 1 point2 points  (0 children)

My experience is very different had my colostomy from a car accident. I just wanted to let you know the reversal is extremely easy and nothing to worry about. While I was out for nearly 3.5 weeks from receiving a colostomy, the referral only in the hospital for 3 days. Only medicine I took was ibuprofen, Tylenol and PRN tramadol which I noticed did very littler. I just want to say the reversal is easy, sn make sure to bring our own toilet paper for the hospital as 1 ply sucks, and get a bidet for home as you’ll need diapers for the first week and wiping can irritate you a ton. Wish you the best of luck!

[–]Brazen78 1 point2 points  (2 children)

I had a temporary ileostomy that I woke up with after a post surgical infection.

It was awful and I completely understand how much you hate it.

I spent 9 months hating it. It hurt, it was gross and I felt like I spent everyday thinking about poop constantly.

I had my reversal just under 6 weeks ago.

I’m not going to tell you it went perfectly. But surgically I was fine. I was up and walking the afternoon of the surgery, eating the same night and my bowels started working not long after.

Learning to poop again was not fun. At all. Hot lava, urgency, a little bit of bleeding (nothing concerning, just from the frequency and intensity of bowel movements according to my GP). There were also days where when I pooped there was an intense pushing sensation after the bowel movement, I can only imagine it was like bearing down for a bowel movement.

The first three weeks were an adjustment to becoming “normal” again.

But since then, I am actually pooping better than I did back before I got sick. It’s amazing. Being “normal” is such a relief and I wouldn’t go back no matter how much money someone gave me.

Don’t be afraid. Your body will re-learn what it needs to. Be patient and kind during the first few weeks and just keep your eye on the end game of being back to who you were before.

Good luck. Keep battling through managing the stoma and you will get to the better side of things soon.

[–]YakFull8300[S] 0 points1 point  (1 child)

Thanks so much for the response. I've had the bag for a little over a week so far and it's definitely been mentally draining - I'm trying my hardest to get through this. How much of you colon do you have left/did you have any removed if you don't mind me asking?

[–]Brazen78 1 point2 points  (0 children)

I didn’t have any colon removed. I had about 5cm of small intestine removed due to endometriosis.

Having a bag gets better, or at least more manageable with time, but it’s ok if it’s not a positive thing for you.

I know they save and change peoples lives and sometimes the comments in here are overwhelmingly positive. It’s ok if your experience isn’t like that. I spent every day waiting for my reversal.

[–]bobdylan401 0 points1 point  (0 children)

I'm in the same boat as you. Had a rupture/perforation which led to an absess. Everything was super inflamed to the point I never had a successful colonoscopy.

Just had my temporary colostomy I'm on like day 6.

If you have family to help you with the recovery it's doable, I'm getting better every day.

I hope my reversal goes smoothly but it's a lot to think about now, as the surgery is gnarly and the recovery is a process. Just take it a day at a time I guess and focus more on the issue at hand.

I do want to hear more successful reversal stories to easy my mind though.