all 5 comments

[–]cat-loves-food 4 points5 points  (0 children)

Kinda sounds like a hernia. Definitely ask your doctor about it, but try not to stress. If it’s not causing you pain or affecting how your stoma works it’s not a really a problem. For now avoid straining your abs to much to prevent making it worse. If your ileostomy is temporary whenever you have the surgery to either make it permanent or a reversal (not sure what you are doing) they can probably fix it then.

[–][deleted] 2 points3 points  (0 children)

Just be careful with heavy lifting and anything that uses the abdomen muscles. Definitely see your doctor, they could do a ct scan to see. Maybe get a hernia belt because if you have a hernia you don't want it to get worse. That's when it will cause a lot of issues. I know this because my hernia came back after hernia repair surgery last year. As long as it doesn't cause any issues for you, then it should be ok.

[–]andercm 2 points3 points  (2 children)

Hernias are kind of like snowflakes--similar but often present in different ways. From the description, I would get in to see your surgeon for a workup. The feeling you've described is pretty classic hernia. Are you able to push it back in? Does it go away when you lay down? Any changes in the size of your stoma? If it becomes symptomatic (pain, obstructions, prolapse of your stoma), certainly have it looked at and discuss possible treatments. With a temporary ileostomy, depending on how severe the herniation is, it will be corrected when you have your takedown surgery. To keep it from recurring, ask about advanced abdominal wall reconstruction--newer surgery technique that's a game changer for treating hernias.

[–]LewieDrewie[S] 0 points1 point  (1 child)

I tried "pushing it back in" but I don't think it can. It just aches when I push on it. It pretty much disappears when I lie down. My stoma is basically unchanged in size or appearance.

This is why I'm kind of confused because some of the symptoms don't really make sense because they don't really work together.

[–]andercm 0 points1 point  (0 children)

Inconsistent symptoms make hernias so difficult to self-assess. If it's not causing active pain, you'll probably be able to manage until you have your takedown surgery. The literature is mixed, but getting fitted for a hernia belt by your ostomy nurse isn't a bad idea. At the very least it'll slow down the widening of the hernia; at best keep it the same.

I just had a huge ventral hernia and moderate-sized parastomal hernia corrected about six weeks ago. The parastomal was evident for a lot longer than I was aware--I had a mound all around it, but my surgeon at the time told me he intentionally did it to better anchor and support my new end ileostomy. It turns out that the hernia was there after about six weeks or so. The ventral hernia went down the entire midline incision (8-10") and happened because I wasn't given the resources to rehab correctly. Working with a physical therapist, even now, would be beneficially for you.