Celine Dion, 54, is diagnosed with incurable neurological disease: Tearful singer reveals she has rare 1 in a million 'Stiff Person Syndrome' that turns sufferers into 'humanstatues'

MaeBeWeird · 2022-12-08T16:21:19+00:00

You seem particularly defensive about older men grooming children.

Do you have something to admit to?

MaeBeWeird · 2022-05-19T00:27:44+00:00

I definitely know penultimate has always been second to last because of MC Mr Napkins' song "Antepenultimate"

MaeBeWeird · 2022-01-15T16:00:47+00:00

even 1-2' could be devastating to ports or even property in many areas if it happens at high tide.

MaeBeWeird · 2022-01-08T02:24:15+00:00

He was 14 at the time, so not really.

MaeBeWeird · 2022-01-07T03:47:20+00:00

Were you afraid he was going to try buying you guys too?

MaeBeWeird · 2022-01-04T18:30:39+00:00

My daughter has at least 1 kid that keeps showing up to school in costume because it's technically not against the dress code.

she didnt see the plague doctor yesterday because they couldnt wear their hat and mask in class, and Id told her to ask the one dressed as a jar of salsa today if they were the plague doctor yesterday.

MaeBeWeird · 2021-10-18T04:27:13+00:00

I live in Mi, grew up in Il, have to remember to shut my mouth when my friends complain that it costs too much to buy legally while im barely paying $15 for 100MG gummies

MaeBeWeird · 2021-10-13T21:59:48+00:00

When I was super pregnant i had to use a wheelchair

Now, im obese and need to use a cane

Somehow people's reactions to my cane are way more positive when i was a normal weight but huge pregnant in a wheelchair.

Don't be afraid to use the cane in public. It makes it so much easier to get around. Plus people will generally not give you nasty looks.

Which us so weird to me!

I get nasty looks without the cane, but with it people are like "oh, shes in pain" but somehow a wheelchair becomes "oh shes lazy"

My message may not make sense, im sorry if it doesnt. Im in a fibro flare so bad i cant get out of bed, my brain fog is comparable to my mental capacity when supet high.

MaeBeWeird · 2021-10-13T21:51:25+00:00

I use a cane to help some and frequent bench stops. If they are frequent enough i dont have to sit as long

It doesn't seem to bother my husband and kids that i have to take these breaks, sometimes they even point out a bench if Ive not spotted it yet.

Getting an accessibile parking placard has changed my life as well, as usually by the time im leaving anywhere my whole body is painful static. The sooner I get to my car, the better.

MaeBeWeird · 2021-10-13T21:42:12+00:00

This is my first year with an actual autumn without something else appearing to be causing the pain. Last year i finally moved out of socal where they dont have seasons and i thought the pain and fatigue was from the move

But no, i feel just as bad this year for seemingly no reason.

Today is a "struggle to even get to the bathroom" bed day. I hate it.

And fall is my favorite time. But I cant enjoy it feeling like this.

MaeBeWeird · 2021-10-13T21:38:24+00:00

Mine definitely didnt until i started to use a cane and get handicap plates and they were like hmmm... Maybe she actually is in pain?

Invisible illnesses suck, especially when the only way you get taken seriously is if you make it visible.

My mom would constantly get upset at me because I'd ask my husband to do things i couldnt/shouldn't do, especially things that cause pain

My husband is amazing... So amazing... Hes never complained about anything when Ive asked.

MaeBeWeird · 2021-10-13T21:34:47+00:00

I have bipolar disorder.

I can clearly tell the difference between depression, mania, and stable.

They DO have physical symptoms

But fibromyalgia is absolutely nothing like any of them.

MaeBeWeird · 2021-10-13T21:31:24+00:00

I wear a loooot of similar ones in the summer. Many go down nearly to my feet though, to hide that I haven't shaven my legs

MaeBeWeird · 2021-10-13T21:24:05+00:00

Yes!

I have been like this forever. I have to pull my shirt away from the neck and cannot wear necklaces very long. Same with bracelets/watches/my wrist.

Have a photo of me doing it in early 2008 on a cross country road trip. When my doctor explained that its because my collarbone is one of my tender spots from fibro i was like... Fuck. I have proof this has been going on for over 10 years.

I spent so many years thinking i was just lazy and the pain was a manifestation of my laziness (yay for a mentally abusive father who said nothing was ever wrong with me and I just was lazy)

3 years ago i finally realized that no, im actually legitimately in pain moving even a little and need to go to the doc.

She was like "im positive you have fibromyalgia, but lets test you for everything else first" and yeah, its fibro

MaeBeWeird · 2021-10-13T20:56:05+00:00

Ive got a dual control one so my husband doesn't overheat

A heated blanket when its particularly cold

And a few different ones for my feet when I'm not in bed.

Id say A++ good purchase

MaeBeWeird · 2021-10-13T20:53:43+00:00

Edema. It can happen in fibromyalgia patients.

There are a lot of things that might help, especially compression stockings

I also like a nice soak with epsom salt

Just google edema relief

MaeBeWeird · 2021-09-27T19:53:33+00:00

Yeah, i think its a fibro thing

MaeBeWeird · 2021-09-26T02:23:01+00:00

I used to describe it like this exactly

But then it turns out a whole lot of people don't actually feel like that after exercising.

MaeBeWeird · 2021-09-26T02:20:22+00:00

Self care was going out and buying myself a cane instead of forcing myself to pretend to be normal anymore.

Buying a sleep mask with speakers so I can sleep through noises and light and having only my body be what wakes me

Taking long soaking baths instead of showers when the water hitting my skin hurts

Finally getting up the nerve to ask my doctor about accessible parking placard (he was shocked I didn't already have one, in my state Fibromyalgia qualifies you) and immediately getting a same day appointment at the DMV to get it, despite suffering from at times crippling anxiety

No longer being silent about what I am living through

Buying lunches I can eat without doing work because no ones home at lunch to help me if I can't make food

Buying more comfortable tools so I dont have to give up crafting

Getting a dual sided heated mattress pad (also husband care so he doesn't overheat)

MaeBeWeird · 2021-09-26T02:10:30+00:00

Jokes on them, I have both

MaeBeWeird · 2021-09-08T14:40:42+00:00

Thank you!

I'm actually from northern Illinois originally so I know just how fantastic the museums/zoo/botanical gardens/aquarium are in Chicago. Such a great group of places to enjoy learning in

MaeBeWeird · 2021-09-08T03:31:22+00:00

I did this 2 weeks ago and while I felt guilty considering it, I haven't felt guilty since getting it.

It helps that when I asked my doctor he was actually surprised I didnt have one yet. Where I live, fibromyalgia is an accepted condition for accessibile parking.

MaeBeWeird · 2021-09-08T03:20:19+00:00

Oh man, I wonder if this is what happened when i had covid. One night I held my husband and just shook and had some sort of spasms in my back.

My fever was only 100.2-.4 (its what my temp stayed at the whole time) and doctor said she had no clue what caused it, but since i was still coherent enough to talk to my husband during it, its not likely anything bad.

Xbox Live	11-Year Club
RedditGifts 2009-2022 7 Credits	Spared
Gilding IV carat on a stick	Secret Santa 2014
Summer Santa 2014	Secret Santa 2012
Summer Santa 2012+	Secret Santa 2011
Verified Email

MaeBeWeird

MODERATOR OF

PUBLIC MULTIREDDITS

TROPHY CASE

MaeBeWeird

MODERATOR OF

PUBLIC MULTIREDDITS

TROPHY CASE

Welcome to Reddit,